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Roanoke Voices

A life-long struggle with Cystic Fibrosis

7/18/2017

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My 19-year-old nephew has struggled, really struggled, with Cystic Fibrosis since the age of 6 months.  In order to stay alive, he endures 2.75 hours of breathing treatments each day, takes an unbelievable number of medications daily, and has been hospitalized 12 times; the latest was to surgically implant a port because his veins no longer tolerate IVs.  Even with his father's employer's insurance, Andrew's medical bills cost more than most monthly mortgage payments.  Family members are extremely worried about Andrew's health, this pre-existing condition, and his ability to obtain insurance at a reasonable price when he ages out of his parents' policy.  Another obstacle is the fact that Andrew does not have the stamina needed to work full time, so his ability to earn a living wage and support himself is absolutely nil.

Congress needs to consider this type of situation/condition when writing health care legislation.  American citizens deserve affordable health care that enables them to seek and obtain life-saving medication.

​--Jackie, from Roanoke

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